Results of trial
This a tough update to write - re: the success of the immunology trial -- but I promised, so here it is.
Last week, I went to NIH for 1 month follow up, going through a battery of scans/tests, an unexpected trip to the emergency department to discover that I have Pericarditis after waking in the morning with crushing chest pain. I was in good time to make it to the clinic appointment with my Immunotherapy team.
Net: at least to some extent, the bad guys out-maneuvered the 300 M good guys. The good guys may have had an impact, but not enough, and may continue to flourish, grow, and discourage the Cancer, but not hopeful. We're looking at what other options are available at The Tom Baker
I can't thank all of you enough for helping me stay the course and, I'm striving really really hard to do exactly that now, and forever.
If I can return your generosity at all, maybe it's to pass on the philosophy that strikes many with life threatening disease -- i.e., if its not life-threatening, don't stress!! Simply fix it if its fixable, live with it if its not. Every moment of every day, cherish life, laughter, people, sunrises and sunsets, little caterpillars, funny children. Please guys - don't wait until you or your loved ones get a life threatening illness to fully embrace how beautiful life is, and that which stresses you is, in all likelihood, the 'small stuff."
So I am back in Canmore now and open to some walking, resting and drinking tea!
Love from Elaine
This a tough update to write - re: the success of the immunology trial -- but I promised, so here it is.
Last week, I went to NIH for 1 month follow up, going through a battery of scans/tests, an unexpected trip to the emergency department to discover that I have Pericarditis after waking in the morning with crushing chest pain. I was in good time to make it to the clinic appointment with my Immunotherapy team.
Last week, I went to NIH for 1 month follow up, going through a battery of scans/tests, an unexpected trip to the emergency department to discover that I have Pericarditis after waking in the morning with crushing chest pain. I was in good time to make it to the clinic appointment with my Immunotherapy team.
Net: at least to some extent, the bad guys out-maneuvered the 300 M good guys. The good guys may have had an impact, but not enough, and may continue to flourish, grow, and discourage the Cancer, but not hopeful. We're looking at what other options are available at The Tom Baker
I can't thank all of you enough for helping me stay the course and, I'm striving really really hard to do exactly that now, and forever.
If I can return your generosity at all, maybe it's to pass on the philosophy that strikes many with life threatening disease -- i.e., if its not life-threatening, don't stress!! Simply fix it if its fixable, live with it if its not. Every moment of every day, cherish life, laughter, people, sunrises and sunsets, little caterpillars, funny children. Please guys - don't wait until you or your loved ones get a life threatening illness to fully embrace how beautiful life is, and that which stresses you is, in all likelihood, the 'small stuff."
If I can return your generosity at all, maybe it's to pass on the philosophy that strikes many with life threatening disease -- i.e., if its not life-threatening, don't stress!! Simply fix it if its fixable, live with it if its not. Every moment of every day, cherish life, laughter, people, sunrises and sunsets, little caterpillars, funny children. Please guys - don't wait until you or your loved ones get a life threatening illness to fully embrace how beautiful life is, and that which stresses you is, in all likelihood, the 'small stuff."
So I am back in Canmore now and open to some walking, resting and drinking tea!
Love from Elaine
Love from Elaine
Home coming !!!!!
Improving day by day and last evening it was decided that I am good enough to go home !! I think they were tired of coming to my empty room, while I was out walking !!!!......just kidding.
So today I am donning my sparkling red shoes T shirt. KEEPING CLAM AND CLICKING MY HEELS !!!
Looking forward to being reunited with my family and friends.
I have to return for two days in October for more scans and an assessment with the hopes that the good guys are making headway with the baddies.,
I would like to thank you for all your comments, good wishes and support.along this part of my journey. Most of the time it was the highlight of my day.
Well I shall see you soon. PS The kids are in for a big surprise
Improving day by day and last evening it was decided that I am good enough to go home !! I think they were tired of coming to my empty room, while I was out walking !!!!......just kidding.
So today I am donning my sparkling red shoes T shirt. KEEPING CLAM AND CLICKING MY HEELS !!!
Looking forward to being reunited with my family and friends.
I have to return for two days in October for more scans and an assessment with the hopes that the good guys are making headway with the baddies.,
I would like to thank you for all your comments, good wishes and support.along this part of my journey. Most of the time it was the highlight of my day.
Well I shall see you soon. PS The kids are in for a big surprise
Travelling again
This is james writting for elaine. She is very tired after her procedure today and wished to update you all, so i offered to write for her.
The last two months have been really tough. The tumor in the esophagus started to grow when mum and dad were here back in september. I was fitted with a feeding tube which caused diarrhoea. I began getting weaker from that point on.
Friends from work have been very good at getting me out in the mornings for short walks to which i am very greatful and I usally meet other girlfriends at weekends for short activities and chats over tea. I am also greatful to friends and family who send emails and message me I am so lucky to have you all in my life.
My Oncologist gave me two options,
Option 1, two doses of radiation, 1 week apart in Abbotsford, 1hour flight away. Along with dilation of the area.
Option 2, have a stent placed in the esophagus. Which would rule out the option of radiation in the future.
Each treatment potentially gives me 2 to 3 months symptom control.
We chose option 1 and started last week. Swallowing has improved but my stomach is rejecting food.
I have been visited by the staff in community care, who have been giving me over night hydration. My energy levels are very low due to the lack of nutrition.
I had my second treatment today and we altered some medication to help with the stomach issue. We fly back tomorrow to see what next week brings.
I appoligies for the delay in responding. Best wishes, love Elaine
The last two months have been really tough. The tumor in the esophagus started to grow when mum and dad were here back in september. I was fitted with a feeding tube which caused diarrhoea. I began getting weaker from that point on.
Friends from work have been very good at getting me out in the mornings for short walks to which i am very greatful and I usally meet other girlfriends at weekends for short activities and chats over tea. I am also greatful to friends and family who send emails and message me I am so lucky to have you all in my life.
My Oncologist gave me two options,
Option 1, two doses of radiation, 1 week apart in Abbotsford, 1hour flight away. Along with dilation of the area.
Option 2, have a stent placed in the esophagus. Which would rule out the option of radiation in the future.
Each treatment potentially gives me 2 to 3 months symptom control.
We chose option 1 and started last week. Swallowing has improved but my stomach is rejecting food.
I have been visited by the staff in community care, who have been giving me over night hydration. My energy levels are very low due to the lack of nutrition.
I had my second treatment today and we altered some medication to help with the stomach issue. We fly back tomorrow to see what next week brings.
I appoligies for the delay in responding. Best wishes, love Elaine
The past 3-4 weeks we have been working closely with my family doctor to get the right combination of medication that is most effective for me. By doing this it has improved many of my symptoms. The overnight hydration was stopped and now I have to get a litre of water, tea, juice etc in on top of the nutrition supplement drinks. So feeling stronger than last entry and still up for walks and tea.
Home coming !!!!!
Improving day by day and last evening it was decided that I am good enough to go home !! I think they were tired of coming to my empty room, while I was out walking !!!!......just kidding.
So today I am donning my sparkling red shoes T shirt. KEEPING CLAM AND CLICKING MY HEELS !!!
Looking forward to being reunited with my family and friends.
I have to return for two days in October for more scans and an assessment with the hopes that the good guys are making headway with the baddies.,
I would like to thank you for all your comments, good wishes and support.along this part of my journey. Most of the time it was the highlight of my day.
Well I shall see you soon. PS The kids are in for a big surprise
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