Thursday, January 1, 2015

day 6-8

Day 6.
 Elaine looks a lot better than she did 2 days ago. Still not her normal self and slept a fair amount yesterday (day 5). Yesterday they found out that the bacteria that caused Elaines fever, its a bacteria usually found in the gut, but due to elaine having no immune system the bacteria leached into her blood stream.
Knowing the name means that they can focus the antibiotic type. They said that in laboratory mice, having a bacterial infection boosted the immune system. It has not been proven in humans yet. So lets hope its the same. 
This morning the Doctors stated that there are now signs that elaine bone marrow is starting to work and over the next few days she should start to feel a little better
The last two days have been hard, We are just waiting for her immune system to steadily rise.

 The mornings are cooling down now. We have been here for over a month and the leaves have started to change. Elaine and i decided to go out for a walk today. A refreshing breeze bringing the scent of freshly cut grass our way, we walked around the grounds with the sounds of fallen leaves crackling under our feet. The sun shining and warming our faces. It feels so good to be out. We returned to the court yard and not wishing to go inside, rested on a bench listening to the birds and insects. The NIH shuts down at the weekend and the hustle and bustle becomes a trickle. A time when the mobile patients reclaim the common spaces. No doubt, we will be out for another walk soon.



Day 7 A bit more freedom


Road to recovery is always hard, especially when you are confined to the ward, but this morning is different.  I am no longer nutropenic. So yesterday we explored the grounds and took in the  fresh air. Wonderful! !!! And we enjoyed it so much that we did it again in the afternoon.
There comes a time in a girls life, where a change in hair do may be required, and for those of you that have known me for a long time, know that I have probably had the same hair style since I was 15, yes, way back in the 1980' s. Well over the last three days my hair has been pulling out every morning in the shower, becoming more and more distressing. I had been told that this would happen, but some how I was in denial, however did get prepared prior to coming, to Bethesda by purchasing a wig and a couple of scarves.So after waiting probably too long, I made the decision to go for the clippers that afternoon for my new hair do.
Today, again we walked outside, nausea  and appetite are still a struggle, but the doctors have started me on another drug to see if that will finally settle things down.



Day 8 Draft


The mornings are cooling down now. We have been here for over a month and the leaves have started to change. Elaine and i decided to go out for a walk today. A refreshing breeze bringing the scent of freshly cut grass our way, we walked around the grounds with the sounds of fallen leaves crackling under our feet. The sun shining and warming our faces. It feels so good to be out. We returned to the court yard and not wishing to go inside, rested on a bench listening to the birds and insects. The NIH shuts down at the weekend and the hustle and bustle becomes a trickle. A time when the mobile patients reclaim the common spaces. No doubt, we will be out again soon.





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